Waking Mathilda: A Memoir of Childhood Narcolepsy (Book)
by Claire Crisp
10 Mar 2017
A native of England, Claire Crisp had it all—a strong marriage, three healthy children, and her own home in Bristol. Then came the H1N1 flu pandemic of 2009. It took only vaccine—one seemingly innocuous vaccine to Mathilda, the baby of the family—to change their lives forever. Diagnosed at age three as the world's youngest child with narcolepsy, the joyful and energetic Mathilda rapidly dissolved into someone unrecognizable. In this compelling narrative, Claire Crisp chronicles the fight for Mathilda's treatment. Leaving their family and country in England, the Crisps begin a new journey—one of faith, of loss, and of love as immigrants to the western shores of the United States.